World NF Awareness Day & Month

World NF Awareness Day & Month – This is an awareness day that hits very close to home as I have Neurofibromatosis (NF). My mother, uncle, and cousins have NF. Some cities are gonna Shine A Light on NF on this day. #EndNF #WorldNFDay #Neurofibromatosis

World NF Awareness Day & Month

NF stands for Neurofibromatosis. NF runs in my family including myself, my mom, uncle, and cousins on my mom’s side. This day is celebrated each year on May 17. Each May is known as NF Awareness Month (Neurofibromatosis Awareness Month) by The Children’s Tumor Foundation.

One purpose of this awareness day is that many medics, politicians, and other healthcare professionals have never heard of the condition.

World NF Awareness Day & Month - This is an awareness day that hits very close to home as I have Neurofibromatosis (NF). My mother, uncle, and cousins have NF. Some cities are gonna Shine A Light on NF on this day. #EndNF #WorldNFDay #Neurofibromatosis

Children’s Tumor Foundation Announces World NF Awareness Day For 2 Million People Around the Globe

On May 17, hundreds of landmarks around the world will “Shine a Light on NF” to raise awareness for genetic disorder that causes tumors and has no cure at this time

The Children’s Tumor Foundation is pleased to announce that in recognition of NF Awareness Month architectural icons across the globe will show their support in the fight against neurofibromatosis (NF) by lighting up in blue and green, the official colors of the NF cause. NF is a genetic disorder that affects 1 in 3,000 births of all populations and causes tumors to grow on nerves throughout the body. It can lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. There is not yet a cure.

Launched by the Children’s Tumor Foundation in 2014 to increase public knowledge of this critical disease, the Shine a Light on NF campaign has grown substantially over the years. Once again, the Children’s Tumor Foundation is partnering with NF organizations across the globe to increase the number of architectural icons that light up, as well as to extend the reach of the NF campaign globally.

“NF Awareness Month is a time when the NF community unites as one voice, and we’re inspired by everyone’s commitment and partnership in our mission to end NF, the Children’s Tumor Foundation is grateful to all involved in this year’s NF awareness campaign – patients, doctors, researchers, volunteers, donors, corporations, organizations, and local governments.”

Simon Vukelj, Vice President, Marketing and Communications, of the Children’s Tumor Foundation

Shine a Light on NF is one part of a month-long awareness campaign that is comprised of online and offline events designed to educate the community about this under-recognized genetic disorder. The Children’s Tumor Foundation leads this effort with the “#EndNF” and “I Know a Fighter” initiatives. In addition, events are held in cities across the country and around the world to raise awareness, raise money for research, and connect the NF community.

The Children’s Tumor Foundation is committed to finding effective treatments for the millions of people worldwide living with neurofibromatosis. In addition to benefitting those who live with NF, this research is shedding new light on several forms of cancer, brain tumors, bone abnormalities, and learning disabilities, ultimately benefiting the broader community.

For more information on the Children’s Tumor Foundation, as well as all the NF Awareness Month campaign initiatives, please visit www.ctf.org/nfawareness.

Shine A Light on NF is back for World NF Awareness Day

The Nero Foundation have teamed up with The Children’s Tumor Foundation in the USA to light up buildings across the World blue and green to Shine A Light on Neurofibromatosis again.

More info!

If you or your child has NF feel free to join the NF Registry.

You can learn more about NF at EndNF.com

Check out the End NF Car in Corbin, KY.

About Children’s Tumor Foundation

The Children’s Tumor Foundation is a 501(c)(3) not-for-profit organization dedicated to finding effective treatments for the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2, and schwannomatosis. NF causes tumors to grow on nerves throughout the body and may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. NF affects 1 in every 3,000 births across all populations equally. There is no cure yet – but the Children’s Tumor Foundation mission of driving research, expanding knowledge, and advancing care for the NF community fosters our vision of one day ending NF. For more information, please visit www.ctf.org.

Info from Press Releases and other NF Related Websites – First Published May 14, 2018. Last updated or republished May 12, 2022.

by clicking on the random post button above, you will be taken to a totally random blog post!

Subscribe To Courageous Christian Father!

Don’t miss any blog posts! Subscribe today! You can subscribe via WordPress or by entering your email! Thank you!

Follow Courageous Christian Father on WordPress.com

Join 5,925 other subscribers

Don’t forget to also share blog posts you love on your favorite social media too! Thank you! Sharing is caring!

Follow on Social Media

Below are some examples of blog entries from all blogs that I do. (Courageous Christian FatherSteve Sews Stuff and SteveZ DesignZ). 

  • 46 Random Bible Verses46 Random Bible Verses
    46 Random Bible Verses - this blog post shares 46 random Bible verses. #bibleverses #bgbg2 46 Random Bible Verses appeared first on Courageous Christian Father. Read the full article at 46 Random Bible Verses ©2004-2022 by Steve Patterson Steve Patterson of Courageous Christian Father. Courageous Christian Father - A Christian… Read more »
  • Fun & Interesting Facts About August 6Fun & Interesting Facts About August 6
    Fun & Interesting Facts About August 6 - I share some fun facts and famous birthdays for the 6th of August. #August6 Fun & Interesting Facts About August 6 appeared first on Courageous Christian Father. Read the full article at Fun & Interesting Facts About August 6 ©2004-2022 by Steve… Read more »
  • More people burning in hell that have more of a heart for evangelizingMore people burning in hell that have more of a heart for evangelizing
    There are more people burning in hell that have more of a heart for evangelizing than in the church today just like the rich man. (Luke 16) Josh Cardwell From Revolution Church Crossville at True Life Church More people burning in hell that have more of a heart for evangelizing… Read more »
  • Remove background in Adobe Photoshop Using Quick ActionRemove background in Adobe Photoshop Using Quick Action
    Remove background in Adobe Photoshop Using Quick Action - real simple and fast! #Photoshop The post Remove background in Adobe Photoshop Using Quick Action appeared first on SteveZ DesignZ. Read more »
  • August – Did You Know?August – Did You Know?
    August, the month that is named in honor of Augustus Caesar and previously went by the name "Sextilis." #August August – Did You Know? appeared first on Courageous Christian Father. Read the full article at August – Did You Know? ©2004-2022 by Steve Patterson Steve Patterson of Courageous Christian Father.… Read more »
  • New Testament Found in the mud of Kentucky floodingNew Testament Found in the mud of Kentucky flooding
    New Testament Found in the mud of Kentucky flooding - with all the recent rain and flooding in Kentucky, a New Testament Bible was found in the mud. New Testament Found in the mud of Kentucky flooding appeared first on Courageous Christian Father. Read the full article at New Testament… Read more »
  • Jelly Bean Prayer Printable – Jelly Bean Gospel – PrintableJelly Bean Prayer Printable – Jelly Bean Gospel – Printable
    Jelly Bean Prayer - Jelly Bean Gospel a way to use the colors of jelly beans to share the gospel. Includes free printable version! National Jelly Bean Day. #JellyBeanPrayer #JellyBeanGospel #JellyBeanDay #JellyBeans #JellyBean #Easter #prayer Jelly Bean Prayer Printable – Jelly Bean Gospel – Printable appeared first on Courageous Christian… Read more »
  • National Jump for Jelly Beans DayNational Jump for Jelly Beans Day
    National Jump for Jelly Beans Day - A day to jump for joy for the love of these colorful and flavorful jelly beans. #JumpForJellyBeanDay #JellyBeans National Jump for Jelly Beans Day appeared first on Courageous Christian Father. Read the full article at National Jump for Jelly Beans Day ©2004-2022 by… Read more »
  • Hello Fresh ReviewHello Fresh Review
    Hello Fresh Review - I review the meal delivery program Hello Fresh. #HelloFresh Hello Fresh Review appeared first on Courageous Christian Father. Read the full article at Hello Fresh Review ©2004-2022 by Steve Patterson Steve Patterson of Courageous Christian Father. Courageous Christian Father - A Christian Blog about the Bible,… Read more »
  • How I learned how to sewHow I learned how to sew
    Steve Sews Stuff How I learned how to sew - so Steve what got you sewing? In this blog post I share how I learned how to sew. #sewing How I learned how to sew appeared first on Steve Sews Stuff. Read more »
  • Two ways to be fooledTwo ways to be fooled
    Two ways to be fooled - believing in something not true or not believing what is true. #truth #fooled #bgbg2 Two ways to be fooled appeared first on Courageous Christian Father. Read the full article at Two ways to be fooled ©2004-2022 by Steve Patterson Steve Patterson of Courageous Christian… Read more »
  • The purpose of the red ball on a seam ripperThe purpose of the red ball on a seam ripper
    Steve Sews Stuff The purpose of the red ball on a seam ripper. #seamripper #redball #sewing The purpose of the red ball on a seam ripper appeared first on Steve Sews Stuff. Read more »

Thank You For Reading!

Print Friendly, PDF & Email

About the Author

Summary
World NF Awareness Day & Month
Article Name
World NF Awareness Day & Month
Description
World NF Awareness Day & Month - This is an awareness day that hits very close to home as I have Neurofibromatosis (NF). My mother, uncle, and cousins have NF. Some cities are gonna Shine A Light on NF on this day. #EndNF #WorldNFDay #Neurofibromatosis
Steve Patterson
Courageous Christian Father
Courageous Christian Father

Feel free to share your comment! Thank you!

This site uses Akismet to reduce spam. Learn how your comment data is processed.