World NF Awareness Day & Month

World NF Awareness Day & Month – This is an awareness day that hits very close to home as I have Neurofibromatosis (NF). My mother, an uncle and cousins have NF. Some cities are gonna Shine A Light on NF on this day. #EndNF #WorldNFDay

NF stands for Neurofibromatosis. NF runs in my family including myself, my mom, uncle and cousins on my mom’s side. This day is celebrated each year on May 17. Each May is known as NF Awareness Month (Neurofibromatosis Awareness Month) by The Children’s Tumor Foundation.

One purpose of this awareness day is that many medics, politicians, and other healthcare professionals have never heard of the condition.

World NF Awareness Day

Children’s Tumor Foundation Announces World NF Awareness Day For 2 Million People Around the Globe

On May 17, hundreds of landmarks around the world will “Shine a Light on NF” to raise awareness for genetic disorder that causes tumors and has no cure at this time

The Children’s Tumor Foundation is pleased to announce that in recognition of NF Awareness Month architectural icons across the globe will show their support in the fight against neurofibromatosis (NF) by lighting up in blue and green, the official colors of the NF cause. NF is a genetic disorder that affects 1 in 3,000 births of all populations and causes tumors to grow on nerves throughout the body. It can lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. There is not yet a cure.

Launched by the Children’s Tumor Foundation in 2014 to increase public knowledge of this critical disease, the Shine a Light on NF campaign has grown substantially over the years. Once again, the Children’s Tumor Foundation is partnering with NF organizations across the globe to increase the number of architectural icons that light up, as well as to extend the reach of the NF campaign globally.

“NF Awareness Month is a time when the NF community unites as one voice, and we’re inspired by everyone’s commitment and partnership in our mission to end NF, the Children’s Tumor Foundation is grateful to all involved in this year’s NF awareness campaign – patients, doctors, researchers, volunteers, donors, corporations, organizations, and local governments.”

Simon Vukelj, Vice President, Marketing and Communications, of the Children’s Tumor Foundation

Shine a Light on NF is one part of a month-long awareness campaign that is comprised of online and offline events designed to educate the community about this under-recognized genetic disorder. The Children’s Tumor Foundation leads this effort with the “#EndNF” and “I Know a Fighter” initiatives. In addition, events are held in cities across the country and around the world to raise awareness, raise money for research, and connect the NF community.

The Children’s Tumor Foundation is committed to finding effective treatments for the millions of people worldwide living with neurofibromatosis. In addition to benefitting those who live with NF, this research is shedding new light on several forms of cancer, brain tumors, bone abnormalities, and learning disabilities, ultimately benefiting the broader community.

For more information on the Children’s Tumor Foundation, as well as all the NF Awareness Month campaign initiatives, please visit www.ctf.org/nfawareness.

Shine A Light on NF is back for World NF Awareness Day

The Nero Foundation have teamed up with The Children’s Tumor Foundation in the USA to light up buildings across the World blue and green to Shine A Light on Neurofibromatosis again.

2020 Participating Shine A Light on NF Locations

Arkansas
Big Dam Bridge
Two Rivers Bridge
Union Plaza Building

Florida
Orlando Eye at ICON Park, Orlando

Georgia
King & Queen Buildings, Atlanta 

Idaho
8th and Main, Boise (May 15-17)
US Bank Building, Boise (May 15-17)

Illinois
The Wrigley Building Clock Tower, Chicago 

Kansas
Aztec Theater, Shanee (May 1)
City Hall, Shawnee
K-7 Bridge and Clear Creek Roundabout, Shawnee

Minnesota
Sperry Tower, Eagan (May 16)

Missouri
Delbert J Haff Circle Fountain, Kansas City (May 15-17)
Giralda Tower on the Country Club Plaza, Kansas City
Kansas City Power & Light Building, Kansas City
Lamar Advertising, Kansas City
Meyer Circle Sea Horse Fountain, Kansas City (May 15-17)
Waldo Water Tower, Kansas City (May 15-17)

Nebraska
Bob Kerry Pedestrian Bridge, Omaha

New Jersey
Ben Franklin Bridge, Camden

New York
Mid-Hudson Bridge, Poughkeepsie (May 1)
National Grid, Syracuse
Niagara Falls, Niagara
Rundel Memorial Library Building, Rochester (May 17, 22-24)

North Carolina
NASCAR Hall of Fame, Charlotte
Wells Fargo’s Duke Energy Center, Charlotte

Ohio
Terminal Tower, Cleveland

South Dakota
Arc of Dreams, Sioux Falls (May 16)
Corn Palace, Mitchell
Dakota Spirit Fountain, Yankton (May 1-31)
Explorers Credit Union Billboard, Yankton
Falls Park, Sioux Falls (May 16)
Larry’s Heating and Cooling Billboard, Yankton
Walnut Street, Yankton (May 1-31)
West Side Park Fountain, Yankton (May 1-31)

Texas
City Hall, Houston
Highway 59 Bridges across Montrose Blvd, Houston

Washington
SR 520 Bridge

AUSTRIA
ARS Electronica Center, Linz
Casinos Austria, Baden
Casinos Austria, Bregenz
Casinos Austria, Kleinwalsertal
Casinos Austria, Linz
Casinos Austria, Zell am See
Falkensteiner Schlosshotel Velden am Wörthersee, Velden
Ferris Wheel, Vienna
Fortress Kufstein, Kufstein
Fountain Schwarzenbergplatz, Vienna
Kaiser-Franz-Josef-Museum, Baden
LENTOS Artmuseum, Linz
Nordwesthaus – Port Rohner, Fußach
Ski jump Berg Isel, Innsbruck
Swing Bridge highline179, Reutte
Tower Pyramidenkogel, Keutschach

CANADA

Alberta
High Level Bridge, Edmonton

British Columbia
Anvil Centre, New Westminster
BC Place, Vancouver
Canada Place, Vancouver
City Hall, Vancouver
Rogers Arena, Vancouver
Science World, Vancouver
Surrey Civic Center, Surrey
 

ENGLAND
Arnold’s Restaurant, Leeds West Yorkshire
Beacon of Light, Sunderland, Tyne and Wear
BFI IMAX, London
BFI Southbank, London
Blackpool Tower, Blackpool, Lancashire
Bournemouth Pier, Hampshire
Bridgewater Place Leeds, West Yorkshire
Broadgate Columns, Coventry, West Midlands
Christchurch Bridge, Reading, Berkshire
Citipark, Merrion Centre, Leeds West Yorkshire
City Hall Clock Tower, Bradford, West Yorkshire
City Museum, Leeds, West Yorkshire
Civic Hall Leeds, West Yorkshire
Clacton Pier, Essex
Everyman Playhouse Theatre, Liverpool, Merseyside
First Direct Arena, Leeds, West Yorkshire
Forster Square Arches, Bradford, West Yorkshire
Fulwell Mill, Sunderland, Tyne and Wear
Gateshead Millennium Bridge, Tyne and Wear
High Street West, Sunderland, Tyne and Wear
Hippodrome, Bristol
Huf Haus, Weybridge, Surrey
Keel Square, Sunderland, Tyne and Wear
Margaret McMillan Tower, Bradford, West Yorkshire
Media City UK, Manchester
Mirror Pool, Bradford, West Yorkshire
National Theatre, London
New Theatre, Oxford, Oxfordshire
Northern Spire Bridge, Sunderland, Tyne and Wear
O2 Academy, Leeds., West Yorkshire
Penshaw Monument, Sunderland, Tyne and Wear
PierZip Tower, Bournemouth Pier, Hampshire.
Preston North End Football Stadium and Splash Sculpture, Preston, Lancashire
Queen Victoria Square Fountains, Hull, East Yorkshire
Queens Hotel Leeds, West Yorkshire
Salesforce Tower, London
Seaburn Lighthouse, Cliffe Park, Sunderland, Tyne and Wear
SSE Arena, Wembley, London
Steve Prescott Bridge, St Helens, Merseyside
The Crucible Theatre, Sheffield, South Yorkshire
The Hexagon Theatre, Reading, Berkshire
The Parkinson Building Leeds, West Yorkshire
Theatre Royal, Plymouth, Devon
Tower 42, London
Town Hall Clock, Wakefield, West Yorkshire
Town Hall, Ipswich, Suffolk
Town Hall, Leeds, West Yorkshire
Town Hall, South Shields, Tyne and Wear
Tyne Bridge, Newcastle, Tyne and Wear
Worcester University Arena, Worcestershire
XSCAPE, Castleford, West Yorkshire

ISLE OF MAN
Pulrose Power Station
Swing Bridge
Tower of Refuge

ITALY
Farnese Palace, Piacenza
Fontana di Piazza Ordelaffi, Forli
Municipio, Castel Mella (BS)
Municipio, Parma
Palazzo della Loggia, Brescia
Porta San Niccolò, Firenze

NEW ZEALAND
Christchurch Airport Terminal and Airways Tower (May 16-17)

NORTHERN IRELAND
Ards Centre, County Down
Armagh Palace, Armagh
Banbridge Old Town Hall, Armagh
Council Offices, Derry
Craigavon Civic Centre, Armagh
McKee Clock, Bangor, County Down

REPUBLIC OF IRELAND
Ashe Memorial Hall, Tralee County Kerry
City and Council Corporate Headquarters, Limerick
County Council Buildings, Tralee County Kerry
County Hall, Dundalk, County Louth
Kildare Council Headquarters, Naas, County Kildare
Kilkenny Castle, Kilkenny
Killarney Library County Kerry
Killarney Town Hall, County Kerry
Mansion House, Dublin
Merchant Quay Council Offices, Limerick
Town Hall, Newbridge, County Kildare

SCOTLAND
Beacon Arts Centre, Greenock
Glasgow College City Campus, Glasgow
Glasgow College Riverside Campus, Glasgow
His Majesty’s Theatre, Aberdeen
International Conference Centre, Edinburgh
Maryhill Burgh Halls, Glasgow
Ness Bridge, Inverness
Queen Victoria Statue, RSA Building, Edinburgh
St Enoch Centre, Glasgow

WALES
Castle Coch, Cardiff
St David’s Hotel and Spa, Cardiff

More info!

If you or your child has NF feel free to join the NF Registry.

You can learn more about NF at EndNF.com

Check out the End NF Car in Corbin, KY.

About Children’s Tumor Foundation

The Children’s Tumor Foundation is a 501(c)(3) not-for-profit organization dedicated to finding effective treatments for the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2, and schwannomatosis. NF causes tumors to grow on nerves throughout the body and may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. NF affects 1 in every 3,000 births across all populations equally. There is no cure yet – but the Children’s Tumor Foundation mission of driving research, expanding knowledge, and advancing care for the NF community fosters our vision of one day ending NF. For more information, please visit www.ctf.org.

Info from Press Releases and other NF Related Websites – First Published May 14, 2018. Last updated or republished May 14, 2020.

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