World NF Awareness Day & Month

World NF Awareness Day & Month – This is an awareness day that hits very close to home as I have Neurofibromatosis (NF). My mother, uncle, and cousins have NF. Some cities are gonna Shine A Light on NF on this day. #EndNF #WorldNFDay #Neurofibromatosis

World NF Awareness Day & Month

NF stands for Neurofibromatosis. NF runs in my family including myself, my mom, uncle, and cousins on my mom’s side. This day is celebrated each year on May 17. Each May is known as NF Awareness Month (Neurofibromatosis Awareness Month) by The Children’s Tumor Foundation.

One purpose of this awareness day is that many medics, politicians, and other healthcare professionals have never heard of the condition.

World NF Awareness Day & Month - This is an awareness day that hits very close to home as I have Neurofibromatosis (NF). My mother, uncle, and cousins have NF. Some cities are gonna Shine A Light on NF on this day. #EndNF #WorldNFDay #Neurofibromatosis

Children’s Tumor Foundation Announces World NF Awareness Day For 2 Million People Around the Globe

On May 17, hundreds of landmarks around the world will “Shine a Light on NF” to raise awareness for genetic disorder that causes tumors and has no cure at this time

The Children’s Tumor Foundation is pleased to announce that in recognition of NF Awareness Month architectural icons across the globe will show their support in the fight against neurofibromatosis (NF) by lighting up in blue and green, the official colors of the NF cause. NF is a genetic disorder that affects 1 in 3,000 births of all populations and causes tumors to grow on nerves throughout the body. It can lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. There is not yet a cure.

Launched by the Children’s Tumor Foundation in 2014 to increase public knowledge of this critical disease, the Shine a Light on NF campaign has grown substantially over the years. Once again, the Children’s Tumor Foundation is partnering with NF organizations across the globe to increase the number of architectural icons that light up, as well as to extend the reach of the NF campaign globally.

“NF Awareness Month is a time when the NF community unites as one voice, and we’re inspired by everyone’s commitment and partnership in our mission to end NF, the Children’s Tumor Foundation is grateful to all involved in this year’s NF awareness campaign – patients, doctors, researchers, volunteers, donors, corporations, organizations, and local governments.”

Simon Vukelj, Vice President, Marketing and Communications, of the Children’s Tumor Foundation

Shine a Light on NF is one part of a month-long awareness campaign that is comprised of online and offline events designed to educate the community about this under-recognized genetic disorder. The Children’s Tumor Foundation leads this effort with the “#EndNF” and “I Know a Fighter” initiatives. In addition, events are held in cities across the country and around the world to raise awareness, raise money for research, and connect the NF community.

The Children’s Tumor Foundation is committed to finding effective treatments for the millions of people worldwide living with neurofibromatosis. In addition to benefitting those who live with NF, this research is shedding new light on several forms of cancer, brain tumors, bone abnormalities, and learning disabilities, ultimately benefiting the broader community.

For more information on the Children’s Tumor Foundation, as well as all the NF Awareness Month campaign initiatives, please visit www.ctf.org/nfawareness.

Shine A Light on NF is back for World NF Awareness Day

The Nero Foundation have teamed up with The Children’s Tumor Foundation in the USA to light up buildings across the World blue and green to Shine A Light on Neurofibromatosis again.

More info!

If you or your child has NF feel free to join the NF Registry.

You can learn more about NF at EndNF.com

Check out the End NF Car in Corbin, KY.

About Children’s Tumor Foundation

The Children’s Tumor Foundation is a 501(c)(3) not-for-profit organization dedicated to finding effective treatments for the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2, and schwannomatosis. NF causes tumors to grow on nerves throughout the body and may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. NF affects 1 in every 3,000 births across all populations equally. There is no cure yet – but the Children’s Tumor Foundation mission of driving research, expanding knowledge, and advancing care for the NF community fosters our vision of one day ending NF. For more information, please visit www.ctf.org.

Info from Press Releases and other NF Related Websites – First Published May 14, 2018. Last updated or republished May 12, 2022.

Subscribe To Courageous Christian Father!


Subscribe

Don’t miss any blog posts! Subscribe today! You can subscribe via WordPress or by entering your email! Thank you!

Follow Courageous Christian Father on WordPress.com

Join 1,605 other subscribers

Don’t forget to also share blog posts you love on your favorite social media too! Thank you! Sharing is caring!

Follow Steve Sews on Social Media


Below are some examples of blog entries from all the blogs that I do. (Courageous Christian Father, Steve Sews Stuff, and SteveZ DesignZ). 

Loading RSS Feed

Recent Posts

  • How Did the Multitude Come to Know and Listen to Jesus?
    How Did the Multitude Come to Know and Listen to Jesus? In ancient Judea, a remarkable figure emerged: Jesus of Nazareth. His teachings, characterized by compassion, wisdom, and a radical message of love and redemption, drew crowds from far and wide. But in an era devoid of modern communication technology, how did the multitude come to know of Jesus and gather to listen to him?
  • Spring Ahead! Daylight Saving Time Begins
    It’s that time again! Time to SPRING AHEAD! or Spring Forward however you want to look at it. Basically for most of us we set our clocks ahead an hour before we go to bed. If we don’t we may be late for church or even work. #timechange #daylightsavingtime #springahead #ChangeBattery #ChangeClock
  • What is Christian Nonfiction?
    What is Christian Nonfiction? Christian nonfiction stands as a beacon of light, offering seekers a path to deeper understanding, spiritual growth, and unwavering faith. But what exactly is Christian nonfiction, and why does it hold such significance in the hearts of believers? Let’s embark on a journey together to explore the essence of Christian nonfiction and its profound impact on our lives.
  • What is Christian Fiction?
    What is Christian Fiction? Christian fiction stands out as a beacon of hope, offering readers more than just a compelling storyline—it offers a glimpse into the transformative power of faith, the journey of redemption, and the enduring message of love and hope found in Christ. But what truly defines Christian fiction, and why does it hold a special place in the hearts of believers?
  • Leap Day Deals for 2024
    Leap Day Deals for 2024 – score some leaping deals on Leap Day for Leap Year 2024 #leapday #leapdaydeals

Thank You For Reading Courageous Christian Father!


Thank you for reading. Please feel free to share and like this blog post.

About the Author

Author: Steve Patterson

A Christian Blogger that enjoys blogging about the Bible, Theology, God, Jesus Christ, Christian Music, Family, Cats, Odd Holidays, sewing and much more. I have been blogging since 2004, however, I have been blogging on Courageous Christian Father since 2012. I enjoy listening to Christian Music. I am married with 1 daughter, 2 step-sons and a step daughter.

Feel free to share your comment! Thank you!

This site uses Akismet to reduce spam. Learn how your comment data is processed.