World NF Awareness Day & Month

World NF Awareness Day & Month – This is an awareness day that hits very close to home as I have Neurofibromatosis (NF). My mother, uncle, and cousins have NF. Some cities are gonna Shine A Light on NF on this day. #EndNF #WorldNFDay #Neurofibromatosis

World NF Awareness Day & Month

NF stands for Neurofibromatosis. NF runs in my family including myself, my mom, uncle, and cousins on my mom’s side. This day is celebrated each year on May 17. Each May is known as NF Awareness Month (Neurofibromatosis Awareness Month) by The Children’s Tumor Foundation.

One purpose of this awareness day is that many medics, politicians, and other healthcare professionals have never heard of the condition.

World NF Awareness Day & Month - This is an awareness day that hits very close to home as I have Neurofibromatosis (NF). My mother, uncle, and cousins have NF. Some cities are gonna Shine A Light on NF on this day. #EndNF #WorldNFDay #Neurofibromatosis

Children’s Tumor Foundation Announces World NF Awareness Day For 2 Million People Around the Globe

On May 17, hundreds of landmarks around the world will “Shine a Light on NF” to raise awareness for genetic disorder that causes tumors and has no cure at this time

The Children’s Tumor Foundation is pleased to announce that in recognition of NF Awareness Month architectural icons across the globe will show their support in the fight against neurofibromatosis (NF) by lighting up in blue and green, the official colors of the NF cause. NF is a genetic disorder that affects 1 in 3,000 births of all populations and causes tumors to grow on nerves throughout the body. It can lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. There is not yet a cure.

Launched by the Children’s Tumor Foundation in 2014 to increase public knowledge of this critical disease, the Shine a Light on NF campaign has grown substantially over the years. Once again, the Children’s Tumor Foundation is partnering with NF organizations across the globe to increase the number of architectural icons that light up, as well as to extend the reach of the NF campaign globally.

“NF Awareness Month is a time when the NF community unites as one voice, and we’re inspired by everyone’s commitment and partnership in our mission to end NF, the Children’s Tumor Foundation is grateful to all involved in this year’s NF awareness campaign – patients, doctors, researchers, volunteers, donors, corporations, organizations, and local governments.”

Simon Vukelj, Vice President, Marketing and Communications, of the Children’s Tumor Foundation

Shine a Light on NF is one part of a month-long awareness campaign that is comprised of online and offline events designed to educate the community about this under-recognized genetic disorder. The Children’s Tumor Foundation leads this effort with the “#EndNF” and “I Know a Fighter” initiatives. In addition, events are held in cities across the country and around the world to raise awareness, raise money for research, and connect the NF community.

The Children’s Tumor Foundation is committed to finding effective treatments for the millions of people worldwide living with neurofibromatosis. In addition to benefitting those who live with NF, this research is shedding new light on several forms of cancer, brain tumors, bone abnormalities, and learning disabilities, ultimately benefiting the broader community.

For more information on the Children’s Tumor Foundation, as well as all the NF Awareness Month campaign initiatives, please visit www.ctf.org/nfawareness.

Shine A Light on NF is back for World NF Awareness Day

The Nero Foundation have teamed up with The Children’s Tumor Foundation in the USA to light up buildings across the World blue and green to Shine A Light on Neurofibromatosis again.

2021 Participating Shine A Light on NF Locations

ALABAMA
Children’s of Alabama Hospital, Birmingham (May 1-31)

ARKANSAS
The Big Dam Bridge, Little Rock (May 22)
Two Rivers Bridge and Park, Little Rock (May 22)
Union Plaza Building, Little Rock (May 22)

FLORIDA
AdventHealth Ginsburg Hospital

GEORGIA
King & Queen Buildings, Atlanta

ILLINOIS
The Wrigley Building Clock Tower, Chicago

KANSAS
Aztec Theater, Shawnee (May 3)
Block Real Estate’s City Place, Overland Park
Bowersock, Mills, & Power Company, Lawrence (May 1-31)
Landmark National Bank, Lawrence (May 1-31)
The Lied Center of Kansas, Lawrence (April 30-May 13; May 24-31)

MASSACHUSETTS
Kenneth F. Burns Bridge, Worcester

MINNESOTA
Sperry Tower, Eagan (May 1)

MISSOURI
6 Penn Centre Building on the Country Club Plaza, Kansas City 
Giralda Tower, Kansas City (May 16)
Kansas City Power & Light Building, Kansas City
Lamar Advertising, Kansas City
Meyer Circle Seahorse Fountain, Kansas City (May 16-22)
Waldo Water Tower, Kansas City (May 16-22)

NEBRASKA
Bob Kerry Bridge, Omaha (May 22)

NEW YORK
City Hall Clock Tower, Yonkers (May 1-31)
Mid-Hudson Bridge, Poughkeepsie 
National Grid, Syracuse
Niagara Falls, Niagara

NORTH CAROLINA
NASCAR Hall of Fame, Charlotte
Wells Fargo’s Duke Energy Center, Charlotte

OHIO
Terminal Tower, Cleveland

OKLAHOMA
Skydance Bridge, Oklahoma City

SOUTH DAKOTA
8th and Broadway Billboard, Yankton
Corn Palace, Mitchell (May 29)
Dakota Spirit Fountain, Yankton (May 1-31)
Explorers Credit Union Billboard, Yankton
Falls Park, Sioux Falls (May 8)
Lamar Advertising Billboard, Rapid City
Lamar Advertising Billboard, Sioux Falls
Vance Thompson Vision, Sioux Falls
Walnut Street, Yankton (May 1-31) 

TENNESSEE
Korean Veterans Memorial Bridge, Nashville

TEXAS
City Hall, Houston
Highway 59 Bridges across Montrose Blvd, Houston
George Bush Intercontinental Airport, Houston
William P. Hobby Airport, Houston

UTAH
Beacon of Hope at Huntsman Cancer Institute (May 14-17)
Reagan Outdoor Advertising Billboard, Salt Lake City

WISCONSIN
Jim Kress Maritime Lighthouse Tower at the Door County Maritime Museum, Sturgeon Bay


AUSTRALIA
New South Wales
Bankwest Stadium, Sydney
Big Banana, Coffs Harbour
Clock Face on City Hall Tower, Newcastle
Ferris Wheel at Luna Park, Sydney

Victoria
AAMI Park, Melbourne
La Trobe University – Science drive and Kingsbury Drive, Melbourne
Melbourne Town Hall, Melbourne
Monash Park Tree, Shepparton
Mooropana Water Tower, Shepparton
Riverlinks Building, Shepparton
St Kilda Sea Baths, Melbourne (May 16-17)
Sunbury Foundation, Sunbury
The Catenary, Geelong(May 16)Queensland
The Drum Theatre, Dandenong (May 15-16)
The Water Tower Wodonga (May 16)
Town Hall Clock Face, Ballarat

Queensland
Brisbane City Hall, Brisbane
Central Park BoardWalk, Townsville (May 24-29)
City Hall Annex, Toowoomba
Civic Centre, Ipswich
Fig Trees on Walker St., Bundaberg 
Flinder’s Square, Townsville (May 24-29)
Historic Fig Trees on Walker St, Bundaberg (May 16-17)
George Roberts Bridge, Townsville (May 24-29)
Little Fletcher Bridge, Townsville (May 24-29)
Old Magistrates Court House, Townsville (May 24-29)
Queensland Sky Point, Gold Coast
Reddacliff Place, Brisbane (May 11)
Story Bridge, Brisbane (May 11)
The Big Mango, Bowen (digital)
Townsville Sign, Townsville (May 24-29)
University of Griffith -Griffith Bridge, Brisbane
University of Queensland (Forgan Smith Building), Brisbane
Victoria Bridge, Brisbane (May 11)
Victoria Bridge, Townsville (May 24-29)
Wharton Reef Lighthouse, Townsville (May 24-29)
Wickham Terrace Car Park Architectural Wall, Brisbane (May 11)

South Australia
Adelaide Oval, Adelaide
Adelaide Convention Centre, Adelaide
Centenary Tower, Mount Gambier
Riverbank Footbridge, Adelaide
Unley Town Hall, Adelaide

Western Australia
Bunbury Footbridge, Bunbury (May 15-16)
Perth Council House, Perth (May 14-15)
Perth Concert Hall, Perth (May 15-16)
Rockingham Foreshare, Rockingham
The Bell Tower, Perth (May 15-16)

Australian Capital Territory
Old Parliament House, Canberra
Telstra Tower, Canberra
The National Science and Technology Centre, Canberra

Tasmania
Launceston Town Hall, Launceston
Paranaple Arts & Convention Centre, Devonport

Northern Territory
Northern Territory Parliament House Water Feature, Darwin (May 16-17)

CANADA
Alberta
High Level Bridge, Edmonton (May 18)

British Columbia
Anvil Centre, New Westminster
BC Place, Vancouver
Bloedel Conservatory, Vancouver
Canada Place, Vancouver
City Hall, Vancouver
Surrey Civic Centre, Surrey
Telus Gardens, Vancouver

Nova Scotia
Colchester-East Hants Public Library, Truro

ENGLAND

All Saints Parish Church, Otley, West Yorkshire
Andrew Marvell Statue, Hull East Yorkshire
Arnold’s Restaurant, Leeds West Yorkshire
Ashton Memorial, Lancaster , Lancashire
Beacon of Light, Sunderland, Tyne and Wear
Blackpool Tower, Blackpool, Lancashire
Bonus Arena, Hull, East Yorkshire
Centre:MK, Milton Keynes, Buckinghamshire
Chester Eastgate Clock, Cheshire
Chester Town Hall, Cheshire
Christchurch Bridge, Reading, Berkshire
Citipark, Merrion Centre, Leeds, West Yorkshire
City Hall Clock Tower, Bradford, West Yorkshire
City Museum, Leeds, West Yorkshire
Civic Centre, Newcastle, Tyne and Wear
Civic Hall Leeds, West Yorkshire
Clock Tower, Herne Bay, Kent
Council House, Nottingham, Nottinghamshire
Earth Tubes, One Angel Square, Manchester
Everyman Playhouse Theatre, Liverpool, Merseyside
Festival Place Shopping Centre, Basingstoke, Hampshire
Forster Square Arches, Bradford, West Yorkshire
Fremlin Walk Shopping Centre, Maidstone, Kent
Friary Shopping Centre, Guildford, Surrey
Fulwell Mill, Sunderland, Tyne and Wear
Gateshead Millennium Bridge, Newcastle, Tyne and Wear
Gosford Street, Coventry, West Midlands
Granary Square Fountains, London
Greyfriars Green walkway, Coventry, West Midlands
Guildhall, Hull East Yorkshire
Hastings Pier, Hastings, East Sussex
High Street West, Sunderland, Tyne and Wear
HUF Haus, Weybridge, Surrey
Hull City Hall East Yorkshire
Hull Minster East Yorkshire
Keel Square, Sunderland, Tyne and Wear
Margaret McMillan Tower, Bradford, West Yorkshire
Maritime Museum, Hull East Yorkshire
Mirror Pool, Bradford, West Yorkshire
National Theatre, London
Northern Spire Bridge, Sunderland, Tyne and Wear
O2 Guildhall, Southampton
Otley Parish Church, West Yorkshire
Pershore Abbey, Worcestershire
Queen Victoria Statue in Queen Victoria Square, Hull East Yorkshire
Salesforce Tower, London
Seaburn Lighthouse, Cliffe Park, Sunderland, Tyne and Wear
Spinnaker Tower, Portsmouth, Hampshire
SSE Arena, Wembley, London
St Helens rugby club Merseyside
Tower 42 (formerly NatWest Tower), London
Town Hall Clock, Wakefield, West Yorkshire
Town Hall, Ipswich, Suffolk
Town Hall, Leeds, West Yorkshire
Town Hall, South Shields, Tyne and Wear
Trinity Square, Hull, East Yorkshire
University of Liverpool School of Engineering, Liverpool, Merseyside
Whittle Arch, Coventry, West Midlands
William Wilberforce monument, Hull, East Yorkshire
Yvonne Arnaud Theatre, Guildford, Surrey

ISLE OF MAN
Pulrose Power Station
The Swing Bridge
Tower of Refuge

ITALY
Battipaglia (SA) illumina Torre di Palazzo di Città
Belluno – illumina la facciata del Teatro Comunale
Bolzano – illumina Palazzo Widmann
Bovezzo -BS- illumina Palazzo Comunale
Brescia – illumina la notte del 17/18 – palazzo Loggia (May 17-18)
Cagliari – illumina Bastione di Sant’Remy
Caino – BS – illumina il palazzo municipale
Cavaso del Tomba (TV) illumina il Municipio
Cingoli – MC – illumina….
Ferrara- illumina Fontana di Piazza della Repubblica
Genova – illumina di blu e verde della Fontana di Piazza De Ferrari
Lecce – illumina Il Sedile
Livorno – illumina Gazebo di Terrazza Mascagni
Lodrino – BS – illumina il palazzo municipale
Longiano -FC – illumina il Castello Malatestiano
Melfi – PZ – illumina le mura della città
Mestre -VE- sede del Municipio e Torre Civica per i giorni (May 15-17)
Modena – illumina di blu la fontana del Graziosi in Largo Garibaldi
Padova -illumina Palazzo Moroni
Pisa – illumina Palazzo delle Logge di Banchi nei giorni (May 14-17)
Ponte S. Pietro – BG – illumina Il Famedio
Regione Friuli Venezia Giulia- illumina palazzo Presidenza della Giunta in piazza Unità d’Italia a Trieste
Rimini: illumina Castel Sismondo
Sarezzo – BS- illumina la biblioteca comunale del Bailo.
Senigallia -AN – illumina Porta Lambertina
Venezia – illumina Ca’ Farsetti e Ca’ Loredan
Villa Carcina – illumina la statua antistante il Municipio

NORTHERN IRELAND
Armagh Palace, Armagh
Banbridge Civic Building, Armagh
Banbridge Old Town Hall, Armagh
Banbridge Viaduct, Armagh
Civic Centre, Antrim
Craigavon Civic Centre, Armagh
Lagan Weir Footbridge, Belfast
Mossley Mill, Newtownabbey
Town Hall, Ballyclare

REPUBLIC OF IRELAND
Enniskillen Castle
Kildare Council Headquarters, Naas, County Kildare
Strule Arts Centre
Town Hall, Newbridge, County Kildare

SPAIN
Sagrada Família (Church), Barcelona
Teatre Nacional de Catalunya (National Theatre), Barcelona
Centre Comercial les Arenes (Shopping Mall), Barcelona
El Liceu (Opera house), Barcelona

Catalonia
Centre Gaudí (Reus)
Fonts del Serrallo (Tarragona)
Ajuntament de Sant Celoni (Sant Celoni)
Rotonda de Miami Platja (Miami Platja)
Pont Anoia de Martorell (Martorell)
Ajuntament de Cunit (Cunit)

SCOTLAND
Beacon Arts Centre, Greenock
Glasgow College Riverside Campus, Glasgow
Glasgow College City Campus, Glasgow
Maryhill Burgh Halls, Glasgow

WALES
Barry Hospital, Glamorgan
University Hospital Llandough, Penarth
University Hospital of Wales, Cardiff
St David’s Hotel and Spa, Cardiff
Carmarthenshire County Hall

More info!

If you or your child has NF feel free to join the NF Registry.

You can learn more about NF at EndNF.com

Check out the End NF Car in Corbin, KY.

About Children’s Tumor Foundation

The Children’s Tumor Foundation is a 501(c)(3) not-for-profit organization dedicated to finding effective treatments for the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2, and schwannomatosis. NF causes tumors to grow on nerves throughout the body and may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. NF affects 1 in every 3,000 births across all populations equally. There is no cure yet – but the Children’s Tumor Foundation mission of driving research, expanding knowledge, and advancing care for the NF community fosters our vision of one day ending NF. For more information, please visit www.ctf.org.

Info from Press Releases and other NF Related Websites – First Published May 14, 2018. Last updated or republished May 1, 2021.

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World NF Awareness Day & Month
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World NF Awareness Day & Month
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World NF Awareness Day & Month - This is an awareness day that hits very close to home as I have Neurofibromatosis (NF). My mother, uncle, and cousins have NF. Some cities are gonna Shine A Light on NF on this day. #EndNF #WorldNFDay #Neurofibromatosis
Steve Patterson
Courageous Christian Father
Courageous Christian Father

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