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World NF Awareness Day & Month

World NF Awareness Day & Month – This is an awareness day that hits very close to home as I have Neurofibromatosis (NF). My mother, an uncle and cousins have NF. Some cities are gonna Shine A Light on NF on this day. #EndNF #WorldNFDay

NF stands for Neurofibromatosis. NF runs in my family including myself, my mom, uncle and cousins on my mom’s side. This day is celebrated each year on May 17. Each May is known as NF Awareness Month (Neurofibromatosis Awareness Month) by The Children’s Tumor Foundation.

One purpose of this awareness day is that many medics, politicians, and other healthcare professionals have never heard of the condition.

World NF Awareness Day

Children’s Tumor Foundation Announces World NF Awareness Day For 2 Million People Around the Globe

On May 17, hundreds of landmarks around the world will “Shine a Light on NF” to raise awareness for genetic disorder that causes tumors and has no cure at this time

The Children’s Tumor Foundation is pleased to announce that in recognition of NF Awareness Month architectural icons across the globe will show their support in the fight against neurofibromatosis (NF) by lighting up in blue and green, the official colors of the NF cause. NF is a genetic disorder that affects 1 in 3,000 births of all populations and causes tumors to grow on nerves throughout the body. It can lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. There is not yet a cure.

Launched by the Children’s Tumor Foundation in 2014 to increase public knowledge of this critical disease, the Shine a Light on NF campaign has grown substantially over the years. Once again, the Children’s Tumor Foundation is partnering with NF organizations across the globe to increase the number of architectural icons that light up, as well as to extend the reach of the NF campaign globally.

“NF Awareness Month is a time when the NF community unites as one voice, and we’re inspired by everyone’s commitment and partnership in our mission to end NF, the Children’s Tumor Foundation is grateful to all involved in this year’s NF awareness campaign – patients, doctors, researchers, volunteers, donors, corporations, organizations, and local governments.”

Simon Vukelj, Vice President, Marketing and Communications, of the Children’s Tumor Foundation

Shine a Light on NF is one part of a month-long awareness campaign that is comprised of online and offline events designed to educate the community about this under-recognized genetic disorder. The Children’s Tumor Foundation leads this effort with the “#EndNF” and “I Know a Fighter” initiatives. In addition, events are held in cities across the country and around the world to raise awareness, raise money for research, and connect the NF community.

The Children’s Tumor Foundation is committed to finding effective treatments for the millions of people worldwide living with neurofibromatosis. In addition to benefitting those who live with NF, this research is shedding new light on several forms of cancer, brain tumors, bone abnormalities, and learning disabilities, ultimately benefiting the broader community.

For more information on the Children’s Tumor Foundation, as well as all the NF Awareness Month campaign initiatives, please visit www.ctf.org/nfawareness.

Shine A Light on NF is back for World NF Awareness Day

The Nero Foundation have teamed up with The Children’s Tumor Foundation in the USA to light up buildings across the World blue and green to Shine A Light on Neurofibromatosis again.

2019 Participating Shine A Light on NF Locations

ALABAMA

Children’s of Alabama Hospital, Birmingham
UAB Hugh Kaul Human Genetics Building, Birmingham

ARKANSAS

Big Dam Bridge, Little Rock
Two Rivers Bridge, Little Rock
Union Plaza Building, Little Rock

COLORADO

Denver City and County Building (May 1-3)

CONNECTICUT

100 Washington Blvd., Stamford (May 13-17)
Harbor Point Park, Stamford (May 13-17)

DELAWARE

Indian River Inlet Bridge, Rehoboth

FLORIDA

Amway Center Spire, Orlando (May 18)
Bank of America Plaza at Las Olas City Centre, Fort Lauderdale
ICON Orlando, Orlando (May 18)
Lake Eola Fountain, Orlando (May 18)
ORLANDO Sign, Orlando (May 18)
See Art Orlando: Astrogenesis II, Global Convergence, Take Flight, Union, and Cedar of Lebanon, Orlando (May 18)
Tower of Light, Orlando (May 18)

GEORGIA

King & Queen Buildings, Atlanta

IDAHO

8th and Main, Boise
US Bank Building, Boise

ILLINOIS

The Wrigley Building, Chicago

INDIANA

Indianapolis Power & Light Company, Indianapolis

KANSAS

Amelia Earhart Memorial Bridge, Atchison
Aztec Theater, Shawnee (May 1, May 17)
Bowersock, Mills, & Power Company, Lawrence
City Hall Fountain, Shawnee
Downtown Topeka Street Arch and Old Water Tower, Topeka
Landmark National Bank, Lawrence
Lied Center of Kansas, Lawrence
TreanorHL, Lawrence

MICHIGAN

150 W. Jefferson, Detroit (May 1-31
1505 Woodward, Detroit (May 1-31)
Ally Detroit Center & Monument Sign, Detroit (May 1-31)
Belle Isle Aquarium, Detroit (May 1-31)
Buhl Building, Detroit (May 1-31)
Cobo Center, Detroit (May 1-31)
Comerica Park, Detroit
Federal Reserve Building, Detroit (May 1-31)
The Ferguson, Detroit (May 1-31)
First National Building & Monument Sign, Detroit (May 1-31)
Fisher Building, Detroit (May 1-31)
Ford Field, Detroit (May 1-31)
Fourteen56, Detroit (May 1-31)
Fox Theatre, Detroit
Greektown Casino & Hotel, Detroit
Little Caesars Arena, Detroit
The Madison, Detroit (May 1-31)
One Campus Martius, Detroit (May 1-31)
One Kennedy Square, Detroit
One Woodward, Detroit (May 1-31)
Penobscot Building, Detroit (May 1-31)
Renaissance Center, Detroit
The Shinola Hotel, Detroit
The Z Lot, Detroit (May 1-31)

MINNESOTA

Sperry Tower, Eagan

MISSOURI

Giralda Tower on the Country Club Plaza (May 16)
Kansas City Power & Light Building, Kansas City (May 16)
Lamar Advertising, Kansas City
Meyer Circle Sea Horse Fountain (May 16)
Waldo Water Tower (May 16)

NEBRASKA

Bob Kerry Pedestrian Bridge, Omaha
Woodmen Life Tower, Omaha (May 16)

NEW YORK

Mid-Hudson Bridge, Poughkeepsie (May 1)
National Grid, Syracuse
Niagara Falls, Niagara
The Peace Bridge, Buffalo

NORTH CAROLINA

Ally Bank (May 16)
NASCAR Hall of Fame (May 16)
The Vue (May 16)
Wells Fargo’s Duke Energy Center (May 16)

OHIO

JACK Cincinnati Casino & Garage, Cincinnati (May 1-31)
JACK Cleveland Casino Sky Bridge, Cleveland (May 1-31)
Nationwide Children’s Hospital, Columbus
Terminal Tower, Cleveland

OREGON

Morrison Bridge, Portland

PENNSYLVANIA

Ben Franklin Bridge, Philadelphia
King of Prussia Business District, King of Prussia (May 1-31)
PECO Crown Lights, Philadelphia (May 1-3)

SOUTH DAKOTA

Corn Palace, Mitchell
Falls Park, Sioux Falls (May 18)
Vance Thomson Vision (May 17-18)
West Side Park Fountain,  Yankton (May 1-31)

TENNESSEE

The Korean War Veterans Memorial Bridge, Nashville

TEXAS

City Hall, Houston (May 17-18)
Highway 59 Bridges across Montrose Blvd (May 17-18)

UTAH

Regan Outdoor Advertising – Billboards, Salt Lake City

WASHINGTON

SR 520 Bridge, Seattle

INTERNATIONAL

AUSTRIA

ARS Electronica Center, Linz
Balanced Mind – Center for Pilates and personal Fitness, Linz
Casino Baden, Baden
Casino Bregenz, Bregenz
Casino Graz, Graz
Casino Innsbruck, Innsbruck
Casino Kitzbühel, Kitzbühel
Casino Kleinwalsertal, Kleinwalsertal
Casino Linz, Linz
Casino Salzburg, Salzburg 
Casino Seefeld, Seefeld
Casino Velden. Velden
Casino Wien, Vienna
Casino Zell am See, Zell am See
Danube-Tower, Vienna
Emperor-Franz-Josef-Museum, Baden
Falkensteiner Hotel Schlosshotel Wörthersee, Velden
Ferris Wheel, Vienna
Festung Kufstein, Kufstein
Fountain Schwarzenbergplatz, Vienna
Gaislachkoglbahn, Soelden
Heeresgeschichtliches Museum (Army Museum), Vienna
highline179, Reutte
IKB Skyscraper, Innsbruck
LENTOS Kunstmuseum Linz (LENTOS artmuseum), Linz
Marina Rohner – Nordwesthaus, Bodensee
METAStadt, Vienna
Murinsel, Graz
Pulverturm Eisenstadt, Eisenstadt
Pyramidenkogel – Keutschach am Wörthersee, Carinthia
Ski jumping hill, Berg Isel
Welios Science Center, Wels

CANADA

Alberta
Calgary Tower, Calgary (May 15)
The Carriage House Inn, Calgary
High Level Bridge Canada, Edmonton (May 19)
TELUS Spark, Calgary

British Columbia
Anvil Centre, New Westminster
BC Place, Vancouver (May 16)
Canada Trade and Convention Centre, Vancouver
City Hall, Vancouver 
Civic Building, Surrey
Roger’s Arena, Vancouver
TELUS World of Science, Vancouver (May 2)

New Brunswick
Village Office, Salisbury

Nova Scotia
Colchester-East Hants Public Library, Truro

Ontario
3D Toronto Sign, Toronto
CN Tower, Toronto

Québec
Hôtel- de-ville, Sherbrooke
Parc Renaud, Joliette
Tour de Montréal, Stade Olympique, Montréal

ENGLAND

Ashton Memorial, Lancaster, Lancashire
Aylesbury Waterside Theatre, Buckinghamshire
Blackpool Tower, Blackpool, Lancashire
Bridgewater Place Leeds, West Yorkshire
Bristol Hippodrome
Broadgate columns, Coventry, West Midlands
Chester Eastgate Clock, Cheshire            
Chester Town Hall, Cheshire
Christchurch Bridge, Reading, Berkshire               
City Hall Clock Tower, Bradford, West Yorkshire                
Civic Hall and Town Hall, Leeds, West Yorkshire
Clock Tower, Herne Bay, Kent   
Council House, Birmingham, West Midlands
Edge Hill University, Lancashire
Everyman Playhouse Theatre, Liverpool, Merseyside
First Direct Arena, Leeds, West Yorkshire
Forster Square Arches, Bradford, West Yorkshire
Friary Centre, Guildford
Gateshead Millennium Bridge, Newcastle, Tyne and Wear
Gloucester Cathedral, Gloucestershire
Granary Square Fountains, London
Guildford Guildhall, Surrey
Guildford Spectrum, Surrey        
Guildhall, Portsmouth, Hampshire         
Heron Tower, London
Huf Haus, Weybridge, Surrey
Lytham Windmill, Lancashire
Margaret McMillan Tower, Bradford, West Yorkshire
Marine Hall Theatre, Fleetwood, Lancashire
Media City UK, Salford, Greater Manchester
Merchant Square Fountain, Paddington, London
Middlesborough: Centre Square Fountain, North Yorkshire
Middlesbrough Transporter Bridge, North Yorkshire
Mirror Pool, Bradford, West Yorkshire
Mount Batten’s Tower, Plymouth, Devon
National Theatre, London                             
New Theatre, Oxford, Oxfordshire
O2 Academy, Leeds, West Yorkshire
Old Joe Clocktower, University of Birmingham
One City Square, Leeds, West Yorkshire
Otley Parish Church, West Yorkshire
Penshaw Monument, Sunderland, Tyne and Wear
PierZip Tower, Bournemouth Pier, Hampshire
Preston North End Football Stadium and Splash Sculpture, Lancashire
Princes Theatre, Clacton
Queen’s Victoria Square Fountains, Hull, East Yorkshire                                                   
Smeaton’s Tower, Plymouth, Devon
Southend on Sea Civic Centre, Essex
Spinnaker Tower, Portsmouth, Hampshire
SSE Arena, Wembley, London
St Helens Rugby Club Merseyside
Sunderland Empire, Tyne and Wear
The Crucible Theatre, Sheffield, South Yorkshire
The Parkinson Building Leeds, West Yorkshire
Tower 42 (Natwest Tower), London
Town Hall Clock, Wakefield, West Yorkshire
Town Hall, Ipswich
Town Hall, South Shields, Tyne and Wear
Tyne Bridge, Newcastle, Tyne and Wear
University of Liverpool School of Engineering, Liverpool Merseyside     
XSCAPE, Castleford, West Yorkshire
Yvonne Arnaud Theatre, Guildford, Surrey

ISLE OF MAN

Pulrose Power Station
Swing Bridge
Tower of Refuge

NEW ZEALAND

Christchurch Airport Terminal and Airways Tower

NORTHERN IRELAND

Ards Centre, County Down
Civic Building, Ballymena, Mid and East
Civic Centre, Antrim Northern Ireland
Council Offices, Derry
Lagan Weir Footbridge, Belfast
Larne’s Smiley Buildings Mid and East Antrim, Antrim
McKee Clock, Bangor, County Down
Mossley Mill, Newtownabbey
Town Hall, Ballyclare Northern Ireland

PORTUGAL

Estátua Equestre D. José I (Equestrian statue of José I), Lisbon
Fonte Luminosa em Belém (The light source of the Praça do Império), Belém
Museu Nacional de Arqueologia (National Museum of Archaeology), Lisbon
Paços do Concelho (Lisbon City Hall), Lisbon

SCOTLAND

Emirates Arena, Glasgow
Glasgow College City Campus, Glasgow
Glasgow College Riverside Campus
Maryhill Burgh Halls, Glasgow
Ness Bridge, Inverness
Queen Victoria statue, RSA Building, Edinburgh
The Falkirk Wheel, Falkirk
The Kelpies, Falkirk 
Titan Crane, Clydebank, Glasgow

SPAIN

El Gaudí Centre de Reus
El Molino, Barcelona
Font d’El Serrallo, Tarragona
Hotel La Fortalesa, Girona
Pont Anoia, Martorell
Pont de Manlleu, Barcelona
Teatre Nacional de Catalunya, Barcelona

WALES

City Hall, Cardiff 
Grand Theatre, Swansea               
Roald Dahl Plass, Cardiff
Roath Park Lake Lighthouse, Cardiff
St David’s Hotel and Spa, Cardiff

More info!

If you or your child has NF feel free to join the NF Registry.

You can learn more about NF at EndNF.com

Check out the End NF Car in Corbin, KY.

About Children’s Tumor Foundation

The Children’s Tumor Foundation is a 501(c)(3) not-for-profit organization dedicated to finding effective treatments for the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2, and schwannomatosis. NF causes tumors to grow on nerves throughout the body and may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. NF affects 1 in every 3,000 births across all populations equally. There is no cure yet – but the Children’s Tumor Foundation mission of driving research, expanding knowledge, and advancing care for the NF community fosters our vision of one day ending NF. For more information, please visit www.ctf.org.

Info from Press Releases and other NF Related Websites – First Published May 14, 2018. Last updated or republished May 13, 2019.

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Categories: Christian End NF End NF Car Neurofibromatosis NF World NF Day

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Steve Patterson

My name is Steve Patterson and I am saved through the blood of Jesus Christ. I have been blogging at Courageous Christian Father since 2012, however, I have been blogging since around 2004. I listen to nothing but Christian Music. I work as a graphic designer.

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